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Well, GJ, we made it to 5 years!

StacheStrong 5 year Anniversary

5 years. I still remember submitting the incorporation and registration documents for a 501(c)3 with my brother with no clue what we were doing. All that mattered was that we were going to flip the script on this disease and help others in any way we could – together. Sadly, it’s been 3.5 years since his passing, but I know he’d be damn proud of what StacheStrong and our family have done in his honor.


In 5 years, we’ve funded 25 separate research grants. We’ve raised nearly $3M. We’ve provided a platform for thousands as we’ve continued to inspire and provide hope. We’ve even helped patients and their families navigate this disease, both medically and emotionally. It all started with my brother keeping the mood light, while going into brain surgery with a fresh mustache. Something so simple is changing lives. That’s who GJ was – and continues to be – through StacheStrong.

Our 5 year organization anniversary has been circled on the calendar for some time, but now that it’s time to articulate the importance of this milestone and all we’ve done, I’m at a complete loss for words. We’ve been running at full speed since starting StacheStrong. We kept our original goal intact and far exceeded anyone’s wildest expectations.
That’s what GJ did – and continues to do – through StacheStrong.

Today, StacheStrong has reached a milestone that sadly only 5% of those diagnosed with GBM get to see. Said differently, 95% of all those diagnosed with this disease will never get to live as long as StacheStrong has. That has to change. 5 years has gone by in a blink of an eye and it was a goal GJ set for himself because he was determined to be a long term survivor. The grants, advocacy, events, and support are the lifeblood of who we are, but to me, there’s nothing more important than the community we’ve created. In 5 years, we’ve met countless people and families facing the same diagnosis that we once walked through with GJ. Their stories have become intertwined with StacheStrong; StacheStrong is now THEIR story, as much as it is ours.
That’s what GJ built – and continues to build – through StacheStrong.


THANK YOU to each and every one of our supporters – every dollar, event registration, sponsorship, and mention of StacheStrong has helped us turn a difficult situation into a driving force for change. Know that we’re just getting started and TOGETHER, we WILL flip the script on this disease!!!

Upcoming Events and Ways to

Support StacheStrong (see below)

StacheStrong Invitational – Golf Tournament

We are excited for the StacheStrong Invitational on Monday, May 8, in Jupiter, Florida. We have several sponsorship options available and remaining foursomes!

#BrewStacheStrong
#BrewStacheStrong is almost here!!! If you have the contact information of a decision maker in the beer/restaurant world, please connect us via email. This campaign has the ability to make a profound impact for years to come!

6th Annual 5K Run/Walk
Register today to participate either virtually in your respective city, or, at the Vestal High School on Saturday, September 16th, 2023 at 3:00pm.

5th Annual NYC Fundraising Event

Save the date for our 5th Annual NYC Fundraiser on Friday, October 20th, 2023. Reach out if you have any contacts who can help support through sponsorships, donate baskets, or if you’re interested in volunteering to serve on our event committee.

TCS New York City Marathon

If interested in applying to be on our 2023 NYC Marathon team, reach out to be considered.

The View Interview

Thank You to our Supporters!

We truly can’t thank everyone enough for their support and generosity over the past FIVE YEARS!!! We can’t do this alone, so if you’re looking for a way to get involved, volunteer, and help drive our mission forward, PLEASE reach out!!!

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StacheStrong Newsletter
December 2022
www.StacheStrong.org
StacheStrong@gmail.com
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Hello  StacheStrong  Fam!
Another year in the books and you all continue to amaze our family with your generosity and support; it’s amazing to see the continual growth of our organization as we aim to flip the script on this disease! We have now raised over $2,500,000 and funded 23 research grants to date – – –  I say it time and time again, but I remember when we raised our first $10,000 and the excitement that I shared with my brother for what we were doing. We have become a leading organization in this space, which is only possible because of YOUR support.


We can’t do this alone, so if you’re looking for a way to get involved, volunteer, and help drive our mission forward, PLEASE reach out!!!
In this newsletter:
Research Funded 
#BrewStacheStrong

5th Annual 5K Run/Walk
4th Annual NYC Event
NYC Marathon
StacheStrong Invitational
#GrowStacheStrong
StacheStrong Media Highlights
Amazon Prime
UPenn Survey
Research  Funded
We’ll update you on all the awesome events and happenings below, but what matters most is where this money is going and the good that it is doing in advancing brain cancer research. We funded 10 grants in 2022 to highly rated and promising areas, including the following:

Glioma Connectome Project (GCP): We brought on additional institutions to this study (University of Texas – Houston and University of Pittsburgh), which was first reported by Yahoo News. We also just announced the first patients have been enrolled in this innovative study! This project aims to utilize information about how the brain is organized (connectomics) and how it relates to the patient’s experience (neuropsych tests, documented deficits, etc.) from before AND after glioma surgery. Machine learning techniques aid in the study about how the brain lives with a tumor and reorganizes during treatment, as well as recurrence, to increase fundamental understanding of the brain and how to provide better care for brain tumor patients.

Brigham and Women’s: Development of therapeutic miR-10b gene editing. MiR-10b is highly abundant in adult gliomas and appears to be essential for the viability of glioma cells. This study is anticipated to present a common therapeutic strategy for GBM and other gliomas. (Anna Krichevsky, PhD – in partnership with NBTS)

UCLA: Novel anti-angiogenic combination therapy for glioblastoma study (Issac Yang, MD and Madhuri Wadehra, PhD)

Weill Cornell: Targeting cancer-associated FAP+ cells in irradiated pediatric brain tumors (Claire Vanpouille-Box, PhD)

MD Anderson: 2 year research fellowship focused on microbial mediated STING activation for glioblastoma immunotherapy (Kristin Huntoon, PhD – in partnership with ABTA)

University of Florida: Discovery grant focused on dendrimer-based approach to target macrophage subsets as a novel immunotherapy (Fan Zhang, PhD – in partnership with ABTA)

Brigham and Women’s: Assessing tumor-associated macrophage plasticity regulation by HNRNPH1 to augment adaptive antitumor responses to glioblastoma (Genaro R. Villa, MD, PhD)


Society of Neurological Surgeons (SNS) Training Program: Formal mentored research program for 2 years for neurosurgery residents. Goal is to improve human health by providing participants with the skills, mentorship, education and experience needed.

These are tangible results to remind you why every dollar matters. It’s why your support is crucial. We can’t promise what tomorrow holds, but we can promise that StacheStrong will continue to push the envelope and fund cutting edge research in the hope of a world without brain cancer.
#BrewStacheStrong
The #BrewStacheStrong collaboration is bringing together breweries and communities across the country in support of a disease that impacts far too many people. Just like every ‘Stache tells a story, every beer tells a story. We #BrewStacheStrong to promote and benefit brain cancer research with breweries across the country.


We have now partnered with over 300 breweries in 40 states, which is humbling and beyond promising. We’ve already started our outreach for 2023’s #BrewStacheStrong campaign so if you would like to help or have a contact or friend in the beer/restaurant world, please connect us via email. This campaign has the ability to make a profound impact for years to come!
5th  Annual  5K  Run/Walk
Our 5th Annual StacheStrong 5K Run/Walk had over 1,500 supporters in all 50 states and it was a truly special day. We raised over $140,000 and our committee is already hard at work to make our 6th Annual the best yet.

We ask you to SAVE THE DATE for the weekend of September 16, 2023. Our in person race will return to the Vestal High School on Saturday, September 16th, 2023 at 3:00pm and will take place virtually in your respective city any time that weekend.
4th Annual  NYC  Fundraising  Event
Together we raised over $100,000 and had a wonderful night sharing stories, laughs and new friendships.  Special thanks to our Sponsors: Novocure, Stryker, EY, Immunomic Therapeutics, Black Diamond Therapeutics, Samson Funding, Regeneron, Hermes Helpers, National Brain Tumor Society, DR Bank, and Armistead Mechanical Inc!!!

SAVE THE DATE for our 5th Annual NYC Fundraiser on Friday, October 20th, 2023. Same time. Same place. Contact us if you have any friends/contacts who can help support through sponsorships, donated baskets and event registrations or want to serve on our event committee. See you then and thanks again!!!
TCS  New  York  City  Marathon
Where to begin?! The StacheStrong Marathon team continues to grow and become a force every November. Our 28 runners came together and raised over $145,000 for brain cancer research and created a new community of engaged supporters along the way. They inspired so many across the country and left a lasting impact during each stride of their 26.2 miles. There’s no two ways about it – GBM sucks – but the family and togetherness we have created with thousands of people have us in awe. It’s incredible to think that I ran the Marathon in 2018 as a platform to start StacheStrong and now here we are with a legit team of 28 runners in 2022 blazing their own trail. It’s truly the StacheStrong difference!! Thank you to each of our team members and welcome to the family!!!

If interested in applying to be on our 2023 NYC Marathon team, please email us at StacheStrong@gmail.com to be considered. We applied for 30 bibs so will have an even bigger team!!!
StacheStrong  Invitational – Golf  Tournament
We are excited to launch our inaugural golf tournament, the StacheStrong Invitational on Monday, May 8, 2023 in Jupiter, Florida. We have several sponsorship options available and foursomes are limited so get involved today! Special thanks to Dick’s Sporting Goods and Evo Italian for immediately jumping on as major sponsors!
#GrowStacheStrong
Our growers have now raised close to $100,000 over the years during November. They made GBM awareness the reason behind growing out their mustache and made a major impact. We’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer and this is a big help. A special thanks to Jeremy Isenberg and the Chex Finer Foods team for leading the way!
StacheStrong  Media  Highlights this Year!
We had plenty of opportunities to spread our mission to new audiences in 2022. If you’d like, give any of the following links a listen, watch or read! Additionally, please keep us in mind for any news segments, podcasts or the like as we aim to ensure more is done in the fight against brain cancer.

UAlbany Magazine-Interactive Story
Yahoo Sports Olympics Coverage
NBC Olympics Coverage
Stryker Interview
Glioblastoma AKA GBM Podcast
Camilita Podcast
UAlbany Excellence Awards
Beer Busters Podcast
CBS Matt Hamilton Hair Donation
Amazon  Prime
Did you know that you can raise money for StacheStrong just by shopping as you already do on Amazon?! Follow the below steps on your phone/computer to add StacheStrong as your benefitting charity and Amazon will donate a portion of all your future purchases to our mission!
 
abc

Get the app

Download or update to the latest version of the Amazon Shopping app on your phone. You can find it in the App Store for iOS or Google Play for Android.

Dining sets

Join AmazonSmile

If you are not already an AmazonSmile member, simply sign up at smile.amazon.com and select your favorite charity to start generating donations, at no cost to you.


Turn on AmazonSmile

Open the app and find ’Settings’ in the main menu (☰). Tap on ‘AmazonSmile’ and follow the on-screen instructions to turn on AmazonSmile on your phone.

UPenn Social Entrepreneurship Movement
We’ve been working with students at the Wharton School at UPenn on a consulting pro bono project in which they are looking to poll our supporters to guide their next steps and recommendations. Please take 30 seconds to fill out this survey!
Thank  You  to  our  Supporters!
We truly can’t thank everyone enough for their support and generosity over the past NEARLY FIVE YEARS!!! Raising over $2,500,000 for brain cancer research is truly amazing and we can’t put into words the profound impact that each of you have had in our fight against GBM.  It means the world to us, but more importantly, to all those hoping for a cure. Next stop, $3,000,000 and a breakthrough!!!

We can’t do this alone, so if you’re looking for a way to get involved, volunteer, and help drive our mission forward, PLEASE reach out!!!
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StacheStrong Newsletter
July 2022
www.StacheStrong.org
StacheStrong@gmail.com
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Hello  StacheStrong  Fam!

Tomorrow is National Glioblastoma Awareness Day and we thought it was the perfect timing to update you on all that has happened with StacheStrong in the first half of 2022! If you only have a brief moment, make sure to register for the upcoming 5th Annual 5K Run/Walk!!!

…otherwise please read on to catch up on all things StacheStrong!

You all continue to amaze our family with your generosity and support; it’s amazing to see the continual growth of our organization as we aim to flip the script on this disease! We have now raised over $2,000,000 and funded 21 research grants to date – – –  I say it time and time again, but I remember when we raised our first $10,000 and the excitement that I shared with my brother for what we were doing. We have become a leading organization in this space, which is only possible because of YOUR support.
In this newsletter:
Research Funded 
5th Annual 5K Run/Walk
#BrewStacheStrong
4th Annual NYC Event
NYC Marathon
Brain Tumor Awareness Month
Olympic Games Beijing 2022
Live Like GJ Initiative
Iron Man Jersey Auction
Golf Tournament
#GrowStacheStrong
Media Highlights
Amazon Prime
Online Store
Research  Funded
We’ll update you on all the awesome events and happenings below, but what matters most is where this money is going and the good that it is doing in advancing brain cancer research. We funded 4 grants already this year in the following highly rated and promising areas:

1) Glioma Connectome Project (GCP): We have added a 7th institution (University of Texas – Houston)  to this study, which was first reported by Yahoo News. We also just announced the first patients have been enrolled in this innovative study! This project aims to utilize information about how the brain is organized (connectomics) and how it relates to the patient’s experience (neuropsych tests, documented deficits, etc.) from before AND after glioma surgery. Machine learning techniques aid in the study about how the brain lives with a tumor and reorganizes during treatment, as well as recurrence, to increase fundamental understanding of the brain and how to provide better care for brain tumor patients.

2) UCLA: novel anti-angiogenic combination therapy for glioblastoma study (Issac Yang, MD and Madhuri Wadehra, PhD)

3) Weill Cornell: Targeting cancer-associated FAP+ cells in irradiated pediatric brain tumors (Claire Vanpouille-Box, PhD)


4) Brigham and Women’s Hospital: Assessing tumor-associated macrophage plasticity regulation by HNRNPH1 to augment adaptive antitumor responses to glioblastoma (Genaro R. Villa, MD, PhD)

These are tangible results to remind you why every dollar matters. It’s why your support is crucial. We can’t promise what tomorrow holds, but we can promise that StacheStrong will continue to push the envelope and fund cutting edge research in the hope of a world without brain cancer.
5th  Annual  5K  Run/Walk
We are excited to host the 5th Annual StacheStrong 5K Run/Walk as a VIRTUAL AND IN PERSON (Vestal, NY) race during the weekend of September 17, 2022. All participants will receive our classic black athletic performance material shirt. Last year’s event had 1,500+ participants in all 50 states and we’re hoping to further grow these totals to make an even bigger impact on brain cancer research!

You can complete the virtual run in your respective city and state at ANY TIME during that weekend and we will also hold the in person race in our hometown of Vestal, NY at the Vestal High School at 3:00pm on Saturday, September 17th. This is of extra significance for our family as it will be the event’s 5th anniversary (#Forever5) and 3 years to the date since Geej gained his wings.


CLICK HERE AND REGISTER TODAY BEFORE THE PRICE INCREASES ON AUGUST 1st!!!
#BrewStacheStrong
The #BrewStacheStrong collaboration is bringing together breweries and communities across the country in support of a disease that impacts far too many people. Just like every ‘Stache tells a story, every beer tells a story. We #BrewStacheStrong to promote and benefit brain cancer research with breweries across the country.


We ended up partnering with 252 breweries in 40 states, which accounted for over 300,000 pints being brewed. Having this many breweries participate is humbling and beyond promising. We’ve already started our outreach for 2023’s #BrewStacheStrong campaign so if you have a contact or friend in the beer/beverage/restaurant industry, please connect us via email. This campaign has the ability to make a profound impact for years to come!
 Our NYC fundraiser was the first ever event that launched StacheStrong in 2018. Our dedicated committee invites you to save the date for October 21st from 7:00 – 11:00 pm. We will be returning to Legends on W 33rd street (5 minute walk from Penn Station). If you, your company or someone you know would like to sponsor the NYC event or donate any items/experiences to raise additional funds, please let us know.

REGISTER TODAY!!!
We have been accepted as a Bronze Sponsor and have been allocated 25 bibs for this year’s race, which will be held on Sunday, November 6th. We have filled our entire team and they have already raised $50,000+. If interested in applying for next year’s marathon, please email us at StacheStrong@gmail.com to be considered!
May is a powerful month in our community as it’s national Brain Tumor Awareness Month, which means we are able to put this dire disease at the forefront. Every day throughout the month of May, we highlighted a different person and family that have been impacted by GBM. This disease affects 13,000 people annually and we feel humbled and blessed to be able to provide a platform for those who have gone through it. We invite you to visit our social media channels and read stories from across the country. If you’ve ever watched a loved one go through this diagnosis, every day is ‘brain tumor awareness day’, but for those that haven’t, this is a raw and emotional look into the disease that ultimately claims 10,000 lives every year. Our social media channels were able to reach over 125,000 different people throughout #BTAM – thank you to all those who shared their story throughout the month.
Olympic  Games – Beijing  2022
This past February was one to remember when Matt Hamilton and the U.S. Men’s Curling team took the world by storm. Matt has become a major advocate for StacheStrong and his electric style, mustache and long locks became a viral sensation. He used his platform to raise over $10,000 for StacheStrong by committing to cut his hair at the conclusion of the Winter Games. Seeing the StacheStrong hat on every major media page as well as having people learn about our mission during their biggest moment was beyond special. Cheers to Matt and #TeamShuster – can’t wait to see the squad back in 2026!!! (Olympics.com coverage)
Click the above picture to watch the video highlighting global coverage of this!
While StacheStrong’s mission is still to raise funds and awareness for brain cancer research, we know the importance of celebrating life. Research allowed GJ to live 25 months after his diagnosis, doubling the statistics for his longevity.  During that time, we were fortunate enough to have countless days enjoying life during his fight. NONE of this would have been possible without his zest for life and positivity. We were fortunate enough to have a strong family unit that made it a priority to enjoy every waking second together. During the 25 months he battled GBM, we were able to experience more together than most do in a lifetime.

We came up with the #LiveLikeGJ Initiative while in hospice care during the last days of Geej’s life. This initiative will honor his legacy by providing a game day experience and giving the gift of “GJ smiles” to a family going through GBM treatments. This year we were able to send Kelly and her family to the Mets game, who represent EVERYTHING StacheStrong stands for. Togetherness, grit, unwavering support for one another and ear to ear smiles. We’re truly blessed to continue to meet amazing individuals like Kelly and proud to provide an evening at the ballpark last week!!! 

A MAJOR thank you and appreciation to the Mets organization for making this day truly memorable. They gave their family everything and more than we envisioned when we started to plan this initiative. Excited to partner with this organization to help families #LiveLikeGJ! 
If you would like to nominate yourself or a family going through GBM, please nominate hereFor corporate sponsorships and partnerships – please contact us!
Iron Man Jersey Auction and First Pitch
Special thanks to the whole Syracuse Mets team for making this happen. The only way to defeat brain cancer is by working together and building a community so we’re beyond appreciative of all the team does!!! My brother was a die hard Mets fan and I think he’d be pretty proud of this partnership.

It’s fitting that the jerseys the team wore that are currently being auctioned off and available for you to bid on are Iron Man because that’s exactly who my brother was throughout his 25 month battle with glioblastoma. A true super hero. Make sure to bid on the game worn Iron Man Jerseys to benefit our mission. Together we WILL strike out brain cancer!!!


Click Here to Bid Today!!!
We are pleased to let you know that we have a devoted committee focused on launching the StacheStrong Invitational in Jupiter, FL on Monday, May 8, 2023. Stay tuned for more details about our golf tournament and please reach out to us if you or anyone you know would be interested in being a sponsor for the inaugural event!
Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November. StacheStrong invites you to participate with us during November by letting your mustache grow wild as we aim to further spread our mission to combat the deadliest brain cancer. Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer. Patients and their families feel isolated during what is seemingly an insurmountable uphill battle. Let’s start the conversation today, one ‘Stache at a time! If interested in participating and raising funds and awareness for our mission,
please create your account/unique fundraising page here!!!
We had plenty of opportunities to spread our mission to new audiences in 2022. If you’d like, give any of the following links a listen, watch or read! Additionally, please keep us in mind for any news segments, podcasts or the like as we aim to ensure more is done in the fight against brain cancer.
UAlbany Magazine-Interactive Story
Yahoo Sports Olympics Coverage
NBC Olympics Coverage
Glioblastoma AKA GBM Podcast
Camilita Podcast
UAlbany Excellence Awards
Beer Busters Podcast
CBS Matt Hamilton Hair Donation
Amazon  Prime  Donations
Did you know that you can raise money for StacheStrong just by shopping as you already do on Amazon?! Follow the below steps on your phone/computer to add StacheStrong as your benefitting charity and Amazon will donate a portion of all your future purchases to our mission! If you think you are already doing so, make sure to check your app because you need to re-enroll bi-annually.
 
abc

Get the app

Download or update to the latest version of the Amazon Shopping app on your phone. You can find it in the App Store for iOS or Google Play for Android.

Dining sets

Join AmazonSmile

If you are not already an AmazonSmile member, simply sign up at smile.amazon.com and select your favorite charity to start generating donations, at no cost to you.


Turn on AmazonSmile

Open the app and find ’Settings’ in the main menu (☰). Tap on ‘AmazonSmile’ and follow the on-screen instructions to turn on AmazonSmile on your phone.

 
Thank  You  to  our  Supporters!
We truly can’t thank everyone enough for their support and generosity over the past 4+ years.  Raising over $2,000,000 for brain cancer research is truly amazing and we can’t put into words the profound impact that each of you have had in our fight against GBM.  It means the world to us, but more importantly, to all those hoping for a cure. Let’s keep this going and TOGETHER, we WILL defeat brain cancer!!!
Facebook
Instagram
Twitter
YouTube
Website
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StacheStrong Newsletter
June 2021
www.StacheStrong.org
StacheStrong@gmail.com
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Hello  StacheStrong  Fam!
It’s been a bit since we got a newsletter out and there’s a lot to update everyone on. As I was reading through our past newsletters, it’s always amazing to see the continual growth. You may have heard it on a national interview, a local commercial or even one of several podcasts and news articles, but we are officially a $1,000,000 organization ($1,250,000+ to be exact!!!) I say it time and time again, but I remember when we raised our first $10,000 and the excitement that I shared with my brother for what we were doing. We knew this had the potential to be a leading organization in this space, we just didn’t realize it would happen in just over 3 years. This is only possible because of YOUR support and we’re humbled to be able to take such a difficult experience and turn it into hope for a better tomorrow. If you only have a brief moment, make sure to register for the upcoming 5K Run/Walk!!!
In this newsletter:
Research  Funded
We’ll update you on all the awesome events and happenings below, but what matters most is where this money is going and the good that it is doing in advancing brain cancer research. Since our last newsletter, we’ve funded several grants to highly rated and promising areas.

1) Northwestern: We funded $50,000 to provide 1 year of research by Dr. Brandyn Castro on developing a patient derived B-cell-based vaccine.

2) UMiami: We funded $50,000 to provide 1 year of research by Dr. Daniel Eichberg on investigating the role of CD97/ADGRE5 receptor in glioblastoma invasion and its mechanism of action in the brain.

3) UCSF: We funded $50,000 to provide 1 year of research by Dr. Jacob Young on in vivo gene screening and transcriptome editing with retroviral-delivered CRISPR-Cas for the treatment of glioblastoma.

4) Yale: We funded $100,000 towards a $1,000,000 gift from the National Brain Tumor Society to launch the targeting DNA damage response in glioma (TDG) consortium. This is a collaboration of world-class researchers advancing an emerging and promising, but underdeveloped, area of cancer research. TDG has the ability to propel an entirely new class of treatments forward for both adults and children with multiple types of malignant brain tumors.

5) Glioma Connectome Project (GCP): This is currently in progress, but we have sent out grant proposals to 11 top tier academic research centers (Henry Ford, Mayo Clinic, MD Anderson, Memorial Hermann, Mount Sinai NYC, Nebraska, Northwestern, Stanford, UCLA, UMiami and UPenn) to fund and launch the GCP. This project aims to utilize information about how the brain is organized (connectomics) and how it relates to the patient’s experience (neuropsych tests, documented deficits, etc.) from before AND after glioma surgery. Machine learning techniques aid in the study about how the brain lives with a tumor and reorganizes during treatment, as well as recurrence, to increase fundamental understanding of the brain and how to provide better care for brain tumor patients.


These are tangible results to remind you why every dollar matters. It’s why your support is crucial. I can’t promise what tomorrow holds, but I can promise that StacheStrong will continue to push the envelope and fund cutting edge research in the hope of a world without brain cancer.
May is a powerful month in our community as it’s national Brain Tumor Awareness Month, which means we are able to put this dire disease at the forefront. Every day throughout the month of May, we highlighted a different person and family that have been impacted by GBM. This disease affects 13,000 people annually and we feel humbled and blessed to be able to provide a platform for those who have gone through it. We invite you to visit our social media channels and read stories from those from New York to Florida to California to Washington and even to Israel and beyond. If you’ve ever watched a loved one go through this diagnosis, every day is ‘brain tumor awareness day’, but for those that haven’t, this is a raw and emotional look into the disease that ultimately claims 10,000 lives every year. Our social media channels were able to reach over 125,000 different people throughout #BTAM, which is exactly what we set out to do when we started StacheStrong. Thank you to all those who shared their story throughout the month.
4th  Annual  5K  Run/Walk
We are excited to host the 4th Annual StacheStrong 5K Run/Walk as a VIRTUAL AND IN PERSON (Vestal, NY) race during the weekend of September 18, 2021. Last year’s virtual race had 1,114 participants in all 50 states and we’re excited to continue to grow as we run/walk to raise awareness and funds for brain cancer research. You can complete the virtual run in your respective city and state at ANY TIME during that weekend and we will also hold the in person race in our hometown of Vestal, NY at the Vestal High School at 3:00pm on Saturday, September 18th. This is of extra significance for our family, because this is where GJ developed his love for running as a standout cross country and track runner for his beloved Golden Bears.
#BrewStacheStrong
Where to begin…the craft beer community has been nothing short of incredible throughout the #BrewStacheStrong campaign. We ended up partnering with 205 breweries in 37 states, which accounted for nearly 300,000 pints being brewed. Having this many breweries participate is humbling and beyond promising, especially given the everchanging protocols the last several months as they geared up for this collab. We’re expecting to raise over $250,000 and are grateful to everyone who was involved and partnered with our organization in making #BrewStacheStrong one of the largest beer collabs in the country!

We’re already gearing up for next year’s annual #BrewStacheStrong campaign so if you have a brewery in mind that wasn’t able to participate this year, let us know and we’ll include them on our save the date email. This has the ability to make a profound impact for years to come!
As we continue to grow, it’s moments like these that truly help us reach the next level of awareness. I was able to sit down with Meghan McCain for an interview to talk about GJ’s diagnosis, the birth of StacheStrong, reaching $1,000,000 raised as an organization, our unfortunate connection of losing a loved one to GBM and everything in between. We are so grateful to Meghan, ABC’s, The View, and all those who were instrumental in making this happen. Special thanks to Jamie, Rick, Molly K and Molly B for their time and dedication. Also a big thank you to David Wright and the New York Mets for a moment I’ll never forget; I’m sure Geej was smiling ear to ear and together we ARE making a difference!
 

Meghan McCain interview on ABC’s, The View

We are excited to get back to some of our established events as restrictions are lifted. Our NYC fundraiser is our flagship and was the first ever event that launched StacheStrong in 2018. Our dedicated committee invites you to save the date for October 22nd from 7:00 – 11:00 pm. This year’s event will take place at Legends on W 33rd street (5 minute walk from Penn Station). As it currently stands, capacity will be 300 people so once tickets are sold out, they’re gone! We will update you as we learn more, but will adhere to any existing regulations. Additionally, if you, your company or someone you know would like to sponsor the NYC event or donate any items/experiences for raffle to raise additional funds, please let us know.
REGISTER TODAY!!!
Whether you’re a new follower or have been here for some time, you’ve probably noticed the awesome daily content and posts highlighting all 205 participating #BrewStacheStrong breweries, as well as the revamped 5k and NYC Event flyers. We’ve been working hard behind the scenes with our 2 outstanding interns, as a part of an internship program with The University at Albany. Rachel and Zach stood out when applying for this internship, and they’ve continued to exceed expectations through their hard work, creative design and commitment to our purpose. The University created this unique and impactful opportunity by providing credits towards their education. They had such a wonderful semester experience that they have decided to stay involved as interns going forward to help with our content creation. We couldn’t do this without them and can’t thank them enough. It truly takes a village!
The TCS NYC Marathon is BACK this year on Sunday, November 7th. We have been accepted as a Community Sponsor and have been allocated 10 bibs for this year’s race, which will be the 50th Anniversary of the event. We have already begun accepting applications and the deadline to apply is Monday, June 21st. If interested, please answer the below questions and email to StacheStrong@gmail.com to be considered.

Application Requirements – Please answer the following 4 questions by June 21st, 2021 for consideration. Please note the $3,500 minimum raised amount as part of our contract:

1) What does StacheStrong mean to you and how do you #LiveStacheStrong?

2) Why are you personally running?

3) What are your plans for promoting your involvement with StacheStrong to raise the $3,500 NYC Marathon minimum?  (Include any social media presence, affiliation groups, etc.)  GET CREATIVE!

4) Provide photos to be used on personal fundraising page and StacheStrong media.
While StacheStrong’s mission is still to raise money for brain cancer research, we know the importance of celebrating life.  Research allowed GJ to live 25 months after his diagnosis, doubling the statistics for his longevity.  During that time, we were fortunate enough to have countless days enjoying life during his fight, and StacheStrong will be honoring his legacy by providing a game day experience to his favorite teams.  COVID had other plans, but as we originally mentioned in GJ’s obituary, we’re excited to launch the ‘Live Like GJ Initiative’ and give the gift of “GJ smiles” to a family going through GBM treatments. 

Our family enjoyed trips, sporting events, concerts and memorable times together and NONE of this would have been possible without his zest for life and positivity.  We also were fortunate enough to have a strong family unit that made it a priority to enjoy every waking second together.  During the 25 months he battled GBM, we were able to experience more together than most do in a lifetime. 

GJ adored the NY Mets, NY Jets and UNC Tar Heels so we will ensure another family battling GBM can be selected to receive tickets to watch one of GJs favorite teams. At this time, we are accepting nominations for New York Mets game tickets! If you would like to nominate yourself or a family going through GBM, please nominate here

For corporate sponsorships and partnerships – please contact us!

We are pleased to let you know that we have a devoted committee focused on launching a StacheStrong golf tournament in the Summer of 2022 within the metro New York area! Stay tuned for more details and please reach out to us if you or anyone you know would be interested in being a sponsor for the inaugural golf event!
The past few months have been a tremendous opportunity for us to spread our mission to new audiences. If you’d like, give any of the following links a listen/watch! Additionally, please keep us in mind for any news segments, podcasts or the like as we aim to ensure more is done in the fight against brain cancer.

UnCapped Podcast
The Beer Mighty Things Podcast
Grey Matters Podcast
A special thanks to Nick at WBNG for building this pro bono PSA commercial
Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November. StacheStrong invites you to participate with us during November by letting your mustache grow wild as we aim to further spread our mission to combat the deadliest brain cancer.  Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer.  Patients and their families feel isolated during what is seemingly an insurmountable uphill battle.  Let’s start the conversation today, one ‘Stache at a time! If interested in participating and raising funds and awareness for our mission, please let us know. New this year – you will be able to create and design your own fundraising page on our site to join the cause!
Amazon  Prime  Day
Did you know that you can raise money for StacheStrong just by shopping as you already do on Amazon?! Follow the below steps on your phone/computer to add StacheStrong as your benefitting charity and Amazon will donate a portion of all your future purchases to our mission! Amazon Prime Day is coming up on June 21st so make sure to do this before.
 
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Get the app

Download or update to the latest version of the Amazon Shopping app on your phone. You can find it in the App Store for iOS or Google Play for Android.

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Join AmazonSmile

If you are not already an AmazonSmile member, simply sign up at smile.amazon.com and select your favorite charity to start generating donations, at no cost to you.


Turn on AmazonSmile

Open the app and find ’Settings’ in the main menu (☰). Tap on ‘AmazonSmile’ and follow the on-screen instructions to turn on AmazonSmile on your phone.

 
My Papa used to say “Don’t cry because it’s over, smile because it happened.” While I normally couldn’t agree more, last week was certainly a day I ‘cried because it was over’ when Ed let me know that his beloved Jess Morris had succumbed to GBM after a valiant 5+ year battle. You see, Jess was the FIRST person I ever met with GBM besides my brother. I remember taking a picture of her and GJ in September 2018 at the Biden Cancer Summit – both donning infectious smiles –  fully spread from ear to ear.

They were handed an incurable diagnosis and absolutely devoted themselves to flipping the script on this disease. Jess and I grew close over the past 3 years and joined arms in the fight against GBM. We’ve shared laughs, tears, a few glasses of red wine and plenty of speaking engagements and key notes together. She was invincible to me and I’ll forever value our friendship.

She founded Our Brain Bank, an interactive app that is focused on gathering data to improve knowledge and treatment options, all while fighting GBM. 10,000 people die every year from GBM and we’ll continue to push the envelope to change that, but losing Jess hit me hard. All the while, I had to remind myself of exactly what she would want. Get up, dust yourself off, and fight this beast. Fight this beast we will. Rest in peace, Jess.
Thank  You  to  our  Supporters!
We truly can’t thank everyone enough for their support and generosity over the past 3+ years.  Raising over $1,250,000 for brain cancer research is truly amazing and we can’t put into words the profound impact that each of you have had in our fight against GBM.  It means the world to us, but more importantly, to all those hoping for a cure.
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StacheStrong Newsletter
December 2021
www.StacheStrong.org
StacheStrong@gmail.com
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Hello  StacheStrong  Fam!
Well, you all continue to amaze our family with your generosity and support; it’s amazing to see the continual growth of our organization as we aim to flip the script on this disease! In 2021 alone we were able to raise over $1,200,000 (1.2M!!!). I say it time and time again, but I remember when we raised our first $10,000 and the excitement that I shared with my brother for what we were doing. We have become a leading organization in this space, which is only possible because of YOUR support. We’re always thankful for what we do have at this time of the year, but we’re beyond humbled to be able to take such a difficult experience and turn it into hope for a better tomorrow.
In this newsletter:
Research Funded 
4th Annual 5K Run/Walk
#BrewStacheStrong
3rd Annual NYC Event
Internship Program
NYC Marathon
Live Like GJ Initiative
StacheStrong Golf Tournament
#GrowStacheStrong
StacheStrong Media Highlights
Amazon Prime
Donate Today!
Research  Funded
We’ll update you on all the awesome events and happenings below, but what matters most is where this money is going and the good that it is doing in advancing brain cancer research. We funded 10 grants in 2021 to highly rated and promising areas, including the following:

1) Glioma Connectome Project (GCP): We have officially kicked off this study, as reported by Yahoo News with 6 top tier academic research centers, including Henry Ford, Mount Sinai NYC, Nebraska, Northwestern, UMiami and UPenn. This project aims to utilize information about how the brain is organized (connectomics) and how it relates to the patient’s experience (neuropsych tests, documented deficits, etc.) from before AND after glioma surgery. Machine learning techniques aid in the study about how the brain lives with a tumor and reorganizes during treatment, as well as recurrence, to increase fundamental understanding of the brain and how to provide better care for brain tumor patients. We are focused on increasing the participating institutions and this will serve 500+ patients in year 1!

2) Ivy Brain Tumor Center: We funded $340,000 as reported by the GlobeNewsWire to go towards the Ivy Center’s first-in-human Phase 0/1 clinical trial of sonodynamic therapy (SDT) for patients with recurrent glioblastoma multiforme and recurrent high-grade gliomas. The published results found that SDT rapidly leads to targeted oxidative stress and cell death in human glioblastoma tissue. SDT was well-tolerated in all patients. This novel drug-device combination has the potential to become a new treatment modality for patients with brain cancer.

3) Duke: We funded $150,000 to to assess how individual cells evolve and adapt over time and in response to therapy. As gliomas are highly plastic with an invariable tendency to recur, understanding the disease on a single cell level will offer insight into cell behavior and mechanisms of resistance. Gene expression profiling at this level will aid in the identification of particular therapeutic sensitivities that may be present and otherwise unseen based on traditional sequencing methods. As a result, this work takes into account the changing cellular landscape of gliomas and has the potential to inform future therapeutics to prevent recurrence.


4) Yale: We funded $100,000 towards a $1,000,000 gift from the National Brain Tumor Society to launch the targeting DNA damage response in glioma (TDG) consortium. This is a collaboration of world-class researchers advancing an emerging and promising, but underdeveloped, area of cancer research. TDG has the ability to propel an entirely new class of treatments forward for both adults and children with multiple types of malignant brain tumors.

5) UMiami: We funded $50,000 to provide 1 year of research by Dr. Daniel Eichberg on investigating the role of CD97/ADGRE5 receptor in glioblastoma invasion and its mechanism of action in the brain.

6) UCSF: We funded $50,000 to provide 1 year of research by Dr. Jacob Young on in vivo gene screening and transcriptome editing with retroviral-delivered CRISPR-Cas for the treatment of glioblastoma.


These are tangible results to remind you why every dollar matters. It’s why your support is crucial. We can’t promise what tomorrow holds, but we can promise that StacheStrong will continue to push the envelope and fund cutting edge research in the hope of a world without brain cancer.
4th  Annual  5K  Run/Walk
Our 4th Annual StacheStrong 5K Run/Walk had over 1,500 supporters in all 50 states and it was a truly special day. We raised over $140,000 and our committee is already hard at work to make our 5th Annual the best yet.

We ask you to SAVE THE DATE for the weekend of September 17, 2022. Our in person race will return to the Vestal High School on Saturday, September 17th, 2022 at 3:00pm and will take place virtually in your respective city any time that weekend.  This is of extra significance for our family as it will be our race’s 5th anniversary (#Forever5) and 3 years to the date since Geej gained his wings.
#BrewStacheStrong
The #BrewStacheStrong collaboration is bringing together breweries and communities across the country in support of a disease that impacts far too many people. Just like every ‘Stache tells a story, every beer tells a story. We #BrewStacheStrong to promote and benefit brain cancer research with breweries across the country.


We ended up partnering with 205 breweries in 37 states, which accounted for nearly 300,000 pints being brewed in 2021. Having this many breweries participate is humbling and beyond promising. We’ve already started our outreach for 2022’s #BrewStacheStrong campaign so if you have a contact or friend in the beer/brewery world, please connect us via email. This campaign has the ability to make a profound impact for years to come!
Together we raised over $70,000 and had a wonderful night sharing stories, laughs and new friendships.  Special thanks to our Sponsors: Novocure, EY, Black Diamond Therapeutics, Undertone, Regeneron, Immunomic Therapeutics, Hermes Helpers, National Brain Tumor Society, McNeil & Company and Armistead Mechanical Inc!!!

SAVE THE DATE for our 4th Annual NYC Fundraiser on Friday, October 21st, 2022. Same time. Same place. Think of friends and contacts you have who can help support through sponsorships, donated baskets and event registrations. See you then and thanks again!!!
Whether you’re a new follower or have been here for some time, you’ve probably noticed the awesome new content throughout the year highlighting all 205 participating #BrewStacheStrong breweries, as well as the revamped 5k and NYC Event flyers. We’ve been working hard behind the scenes with our 2 outstanding interns, as a part of an internship program with The University at Albany. Rachel and Zach stood out when applying for this internship, and they’ve continued to exceed expectations through their hard work, creative design and commitment to our purpose. The University created this unique and impactful opportunity by providing credits towards their education. They had such a wonderful experience and we’re excited to see what’s next for them as they graduate this coming Spring. We couldn’t do this without them and can’t thank them enough. It truly takes a village!
Where to begin?! The StacheStrong Marathon team was simply one of a kind. Our 17 runners came together and raised over $130,000 for brain cancer research and created a new community of engaged supporters along the way. They inspired so many across the country and left a lasting impact during each stride of their 26.2 miles. There’s no two ways about it – GBM sucks – but the family and togetherness we have created with thousands of people have us in awe. It’s incredible to think that I ran the Marathon in 2018 as a platform to start StacheStrong and now here we are with a legit team of 17 runners in 2021 blazing their own trail. It’s truly the StacheStrong difference!! Thank you to each of our team members and welcome to the family!!!

If interested in applying to be on our 2022 NYC Marathon team, please email us at StacheStrong@gmail.com to be considered.
The #LiveLikeGJ Initiative has launched!!!

While StacheStrong’s mission is still to raise funds and awareness for brain cancer research, we know the importance of celebrating life. Research allowed GJ to live 25 months after his diagnosis, doubling the statistics for his longevity.  During that time, we were fortunate enough to have countless days enjoying life during his fight. NONE of this would have been possible without his zest for life and positivity. We were fortunate enough to have a strong family unit that made it a priority to enjoy every waking second together. During the 25 months he battled GBM, we were able to experience more together than most do in a lifetime.

We came up with the #LiveLikeGJ Initiative while in hospice care during the last days of Geej’s life. This initiative will honor his legacy by providing a game day experience to his favorite teams and giving the gift of “GJ smiles” to a family going through GBM treatments. Enter the Marten family. They represent EVERYTHING StacheStrong stands for. Togetherness, grit, unwavering support for one another and ear to ear smiles. We’re truly blessed to continue to meet amazing families like the Martens and proud to provide an evening at the ballpark!!! 

A MAJOR thank you and appreciation to the Mets organization for making this day truly memorable. They gave the Marten family everything and more than we envisioned when we started to plan this initiative. Excited to partner with this organization annually to help families #LiveLikeGJ!

 
If you would like to nominate yourself or a family going through GBM, please nominate hereFor corporate sponsorships and partnerships – please contact us!

We are pleased to let you know that we have a devoted committee focused on launching the StacheStrong Invitational in Florida for a target date of May 2023! Stay tuned for more details about our golf tournament and please reach out to us if you or anyone you know would be interested in being a sponsor for the inaugural event!
Our growers raised over $35,000 throughout the month of November. They made GBM awareness the reason behind growing out their mustache and made a major impact. We’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer and this is a big help. A special thanks to Jeremy Isenberg and the Chex Finer Foods team for leading the way!
We had plenty of opportunities to spread our mission to new audiences in 2021. If you’d like, give any of the following links a listen, watch or read! Additionally, please keep us in mind for any news segments, podcasts or the like as we aim to ensure more is done in the fight against brain cancer.

Interview on ABC’s The View
Yahoo GCP Press Release
GlobeNewsWire $340K Grant Press Release
Cleveland.com Highlight
The Hoboken Girl Highlight
ABC 7 NY NYC Marathon Highlight
Newswise $100K Grant Press Release
UnCapped Podcast
The Beer Mighty Things Podcast
Grey Matters Podcast
Florida Beer Podcast

We are so grateful to Meghan, ABC’s, The View, and all those who were instrumental in making this happen. We’ve had 150,000+ views across their social media platforms on this interview since May, which has helped us greatly in raising awareness.

A special thanks to WBNG for building this pro bono PSA commercial
Amazon  Prime
Did you know that you can raise money for StacheStrong just by shopping as you already do on Amazon?! Follow the below steps on your phone/computer to add StacheStrong as your benefitting charity and Amazon will donate a portion of all your future purchases to our mission!
 
abc

Get the app

Download or update to the latest version of the Amazon Shopping app on your phone. You can find it in the App Store for iOS or Google Play for Android.

Dining sets

Join AmazonSmile

If you are not already an AmazonSmile member, simply sign up at smile.amazon.com and select your favorite charity to start generating donations, at no cost to you.


Turn on AmazonSmile

Open the app and find ’Settings’ in the main menu (☰). Tap on ‘AmazonSmile’ and follow the on-screen instructions to turn on AmazonSmile on your phone.

 
Thank  You  to  our  Supporters!
We truly can’t thank everyone enough for their support and generosity over the past 3+ years.  Raising over $1,200,000 in 2021 alone for brain cancer research is truly amazing and we can’t put into words the profound impact that each of you have had in our fight against GBM.  It means the world to us, but more importantly, to all those hoping for a cure. Next stop, $2,000,000!!!
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Your Donations and Support Made a MAJOR Impact in 2020
2020 was an interesting year, to say the least; however, our supporters made sure to continue to make a difference and support the advancement of brain cancer research.  We had a majority of our events cancelled this year, but still managed to raise nearly $200,000 during a pandemic.  That’s the power of each and every one of you across all 50 states and several countries.  We funded 3 separate clinical trials/research grants this year and with your help, will continue to push the envelope in 2021 and flip the script on GBM!  Thank you from the bottom of our hearts and from all those facing this dire disease.  Here’s to a brighter, safer and healthier 2021!!!
An Added Tax Benefit for 2020 Donations
This spring, the CARES ACT was passed into law and allows a “partial above the line deduction” for your donations.  In the past, the only way to deduct charitable giving was by itemizing your deducations.  In 2020, even if you take the standard deduction on your tax return, you can still claim a deduction of up to $300 in donations made by cash, check or credit card!  Charitable donations can reduce your taxable income and there’s still 2 days to take advantage of these new benefits by donating before the year ends if you haven’t reached $300 in 2020.
Happy New Year!!!
Unfamiliar with our story?  Check out part 1 of our 3 part documentary and get to know the inspiration behind StacheStrong.
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THANK YOU!

WOW.  It’s not often that I’m left speechless, but the 3rd Annual 5K Run/Walk did just that.  Watching 1,114 people within ALL 50 states participate and post on social media, while proudly wearing their neon orange StacheStrong shirts, was a sight to behold.  So many families and communities came together for their loved ones and those affected by GBM. 
 
We had over 100 people run #ForJari in several states.  #TeamMarty was active with large followings in Florida, Ohio and Texas.  The #LexiStrong brigade was out in full force together in Pennsylvania.  #TeamTB had 3 generations of participants in North Carolina.  #TeamRog made a morning out of the event with brunch and a walk together.  #TeamRick had plenty of New York covered.  We even had a family and a running group in Alaska run #ForJohn.  So many of you showed up and represented your loved ones, while also raising a tremendous amount of awareness for StacheStrong and brain cancer research.
 
THIS is why we built StacheStrong – to serve as a beacon of hope and provide a sense of community to all those fighting their battle.
 
As we watched the outpouring of support on social media, I couldn’t help but picture Geej and his infamous smile, knowing that so many people had rallied around our mission.   We can’t thank each of you enough!!!

YOUR IMPACT – OVER $50,000 RAISED!

Because each of you took the time to register, participate and post on social media, we were able to raise net funds of over $50,000.  What does this mean?  We are going to be able to fully fund a clinical trial and already have our Medical Advisory Board reviewing a highly graded grant proposal for Glioblastoma research.  This is a major deal and something each of you can be proud of.  All of your posts, shares, and miles logged are going to make an immediate impact and difference in the advancement of brain cancer research!

WHAT’S NEXT?!
Your support for the 3rd Annual 5K has made a major impact on our ability to continually fund cutting edge research.  We hope your commitment and relationship with StacheStrong continues!  You can support further by visiting our online store, where we have pocket tees, crewnecks, athletic performance shirts (same material as the 5K shirt), as well as hats and many more items.  Comfy and affordable clothing that also benefits brain cancer research? Checkmate!
MOVEMBER – JOIN US!

Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November.  We invite you to  #LiveStacheStrong with us during November and let your mustache grow wild throughout the month as we aim to further spread our mission to combat the deadliest brain cancer.  Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer.  Patients and their families feel isolated during what is seemingly an insurmountable uphill battle.  Let’s start the conversation today, one ‘Stache at a time!!! 

We had a tremendous amount of support last year from different police and fire departments , as well as several individuals from around the United States.  If you or someone you know is interested, please email us and we will set up a donation page for your group on our website.  We mustache you to tag @StacheStrong and use #GrowStacheStrong and #LiveStacheStrong in all social media posts.

Run solo, but not alone. Always run with ROAD iD, the one accessory no runner should be without.  You can customize this simple and stylish ID with the information most important to you, from emergency contact numbers to vital medical info.

Click here to score a Limited Edition StacheStrong ROAD iD.  ROAD iD is donating $10 from each purchase to StacheStrong – pairing peace of mind with purpose! 

WE ARE EXCITED TO HAVE YOU ON TEAM STACHESTRONG AND LOOK FORWARD TO FUTURE EVENTS AND PARTNERSHIPS IN AN EFFORT TO RAISE FUNDS AND AWARENESS FOR BRAIN CANCER RESEARCH!!!
Unfamiliar with our story?  Check out part 1 of our 3 part documentary and get to know the inspiration behind StacheStrong.
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