Newsletters

*|MC:SUBJECT|*
View this email in your browser
StacheStrong Newsletter
June 2021
www.StacheStrong.org
StacheStrong@gmail.com
Facebook
Instagram
Twitter
YouTube
Website
Hello  StacheStrong  Fam!
It’s been a bit since we got a newsletter out and there’s a lot to update everyone on. As I was reading through our past newsletters, it’s always amazing to see the continual growth. You may have heard it on a national interview, a local commercial or even one of several podcasts and news articles, but we are officially a $1,000,000 organization ($1,250,000+ to be exact!!!) I say it time and time again, but I remember when we raised our first $10,000 and the excitement that I shared with my brother for what we were doing. We knew this had the potential to be a leading organization in this space, we just didn’t realize it would happen in just over 3 years. This is only possible because of YOUR support and we’re humbled to be able to take such a difficult experience and turn it into hope for a better tomorrow. If you only have a brief moment, make sure to register for the upcoming 5K Run/Walk!!!
In this newsletter:
Research  Funded
We’ll update you on all the awesome events and happenings below, but what matters most is where this money is going and the good that it is doing in advancing brain cancer research. Since our last newsletter, we’ve funded several grants to highly rated and promising areas.

1) Northwestern: We funded $50,000 to provide 1 year of research by Dr. Brandyn Castro on developing a patient derived B-cell-based vaccine.

2) UMiami: We funded $50,000 to provide 1 year of research by Dr. Daniel Eichberg on investigating the role of CD97/ADGRE5 receptor in glioblastoma invasion and its mechanism of action in the brain.

3) UCSF: We funded $50,000 to provide 1 year of research by Dr. Jacob Young on in vivo gene screening and transcriptome editing with retroviral-delivered CRISPR-Cas for the treatment of glioblastoma.

4) Yale: We funded $100,000 towards a $1,000,000 gift from the National Brain Tumor Society to launch the targeting DNA damage response in glioma (TDG) consortium. This is a collaboration of world-class researchers advancing an emerging and promising, but underdeveloped, area of cancer research. TDG has the ability to propel an entirely new class of treatments forward for both adults and children with multiple types of malignant brain tumors.

5) Glioma Connectome Project (GCP): This is currently in progress, but we have sent out grant proposals to 11 top tier academic research centers (Henry Ford, Mayo Clinic, MD Anderson, Memorial Hermann, Mount Sinai NYC, Nebraska, Northwestern, Stanford, UCLA, UMiami and UPenn) to fund and launch the GCP. This project aims to utilize information about how the brain is organized (connectomics) and how it relates to the patient’s experience (neuropsych tests, documented deficits, etc.) from before AND after glioma surgery. Machine learning techniques aid in the study about how the brain lives with a tumor and reorganizes during treatment, as well as recurrence, to increase fundamental understanding of the brain and how to provide better care for brain tumor patients.


These are tangible results to remind you why every dollar matters. It’s why your support is crucial. I can’t promise what tomorrow holds, but I can promise that StacheStrong will continue to push the envelope and fund cutting edge research in the hope of a world without brain cancer.
May is a powerful month in our community as it’s national Brain Tumor Awareness Month, which means we are able to put this dire disease at the forefront. Every day throughout the month of May, we highlighted a different person and family that have been impacted by GBM. This disease affects 13,000 people annually and we feel humbled and blessed to be able to provide a platform for those who have gone through it. We invite you to visit our social media channels and read stories from those from New York to Florida to California to Washington and even to Israel and beyond. If you’ve ever watched a loved one go through this diagnosis, every day is ‘brain tumor awareness day’, but for those that haven’t, this is a raw and emotional look into the disease that ultimately claims 10,000 lives every year. Our social media channels were able to reach over 125,000 different people throughout #BTAM, which is exactly what we set out to do when we started StacheStrong. Thank you to all those who shared their story throughout the month.
4th  Annual  5K  Run/Walk
We are excited to host the 4th Annual StacheStrong 5K Run/Walk as a VIRTUAL AND IN PERSON (Vestal, NY) race during the weekend of September 18, 2021. Last year’s virtual race had 1,114 participants in all 50 states and we’re excited to continue to grow as we run/walk to raise awareness and funds for brain cancer research. You can complete the virtual run in your respective city and state at ANY TIME during that weekend and we will also hold the in person race in our hometown of Vestal, NY at the Vestal High School at 3:00pm on Saturday, September 18th. This is of extra significance for our family, because this is where GJ developed his love for running as a standout cross country and track runner for his beloved Golden Bears.
#BrewStacheStrong
Where to begin…the craft beer community has been nothing short of incredible throughout the #BrewStacheStrong campaign. We ended up partnering with 205 breweries in 37 states, which accounted for nearly 300,000 pints being brewed. Having this many breweries participate is humbling and beyond promising, especially given the everchanging protocols the last several months as they geared up for this collab. We’re expecting to raise over $250,000 and are grateful to everyone who was involved and partnered with our organization in making #BrewStacheStrong one of the largest beer collabs in the country!

We’re already gearing up for next year’s annual #BrewStacheStrong campaign so if you have a brewery in mind that wasn’t able to participate this year, let us know and we’ll include them on our save the date email. This has the ability to make a profound impact for years to come!
As we continue to grow, it’s moments like these that truly help us reach the next level of awareness. I was able to sit down with Meghan McCain for an interview to talk about GJ’s diagnosis, the birth of StacheStrong, reaching $1,000,000 raised as an organization, our unfortunate connection of losing a loved one to GBM and everything in between. We are so grateful to Meghan, ABC’s, The View, and all those who were instrumental in making this happen. Special thanks to Jamie, Rick, Molly K and Molly B for their time and dedication. Also a big thank you to David Wright and the New York Mets for a moment I’ll never forget; I’m sure Geej was smiling ear to ear and together we ARE making a difference!
 

Meghan McCain interview on ABC’s, The View

We are excited to get back to some of our established events as restrictions are lifted. Our NYC fundraiser is our flagship and was the first ever event that launched StacheStrong in 2018. Our dedicated committee invites you to save the date for October 22nd from 7:00 – 11:00 pm. This year’s event will take place at Legends on W 33rd street (5 minute walk from Penn Station). As it currently stands, capacity will be 300 people so once tickets are sold out, they’re gone! We will update you as we learn more, but will adhere to any existing regulations. Additionally, if you, your company or someone you know would like to sponsor the NYC event or donate any items/experiences for raffle to raise additional funds, please let us know.
REGISTER TODAY!!!
Whether you’re a new follower or have been here for some time, you’ve probably noticed the awesome daily content and posts highlighting all 205 participating #BrewStacheStrong breweries, as well as the revamped 5k and NYC Event flyers. We’ve been working hard behind the scenes with our 2 outstanding interns, as a part of an internship program with The University at Albany. Rachel and Zach stood out when applying for this internship, and they’ve continued to exceed expectations through their hard work, creative design and commitment to our purpose. The University created this unique and impactful opportunity by providing credits towards their education. They had such a wonderful semester experience that they have decided to stay involved as interns going forward to help with our content creation. We couldn’t do this without them and can’t thank them enough. It truly takes a village!
The TCS NYC Marathon is BACK this year on Sunday, November 7th. We have been accepted as a Community Sponsor and have been allocated 10 bibs for this year’s race, which will be the 50th Anniversary of the event. We have already begun accepting applications and the deadline to apply is Monday, June 21st. If interested, please answer the below questions and email to StacheStrong@gmail.com to be considered.

Application Requirements – Please answer the following 4 questions by June 21st, 2021 for consideration. Please note the $3,500 minimum raised amount as part of our contract:

1) What does StacheStrong mean to you and how do you #LiveStacheStrong?

2) Why are you personally running?

3) What are your plans for promoting your involvement with StacheStrong to raise the $3,500 NYC Marathon minimum?  (Include any social media presence, affiliation groups, etc.)  GET CREATIVE!

4) Provide photos to be used on personal fundraising page and StacheStrong media.
While StacheStrong’s mission is still to raise money for brain cancer research, we know the importance of celebrating life.  Research allowed GJ to live 25 months after his diagnosis, doubling the statistics for his longevity.  During that time, we were fortunate enough to have countless days enjoying life during his fight, and StacheStrong will be honoring his legacy by providing a game day experience to his favorite teams.  COVID had other plans, but as we originally mentioned in GJ’s obituary, we’re excited to launch the ‘Live Like GJ Initiative’ and give the gift of “GJ smiles” to a family going through GBM treatments. 

Our family enjoyed trips, sporting events, concerts and memorable times together and NONE of this would have been possible without his zest for life and positivity.  We also were fortunate enough to have a strong family unit that made it a priority to enjoy every waking second together.  During the 25 months he battled GBM, we were able to experience more together than most do in a lifetime. 

GJ adored the NY Mets, NY Jets and UNC Tar Heels so we will ensure another family battling GBM can be selected to receive tickets to watch one of GJs favorite teams. At this time, we are accepting nominations for New York Mets game tickets! If you would like to nominate yourself or a family going through GBM, please nominate here

For corporate sponsorships and partnerships – please contact us!

We are pleased to let you know that we have a devoted committee focused on launching a StacheStrong golf tournament in the Summer of 2022 within the metro New York area! Stay tuned for more details and please reach out to us if you or anyone you know would be interested in being a sponsor for the inaugural golf event!
The past few months have been a tremendous opportunity for us to spread our mission to new audiences. If you’d like, give any of the following links a listen/watch! Additionally, please keep us in mind for any news segments, podcasts or the like as we aim to ensure more is done in the fight against brain cancer.

UnCapped Podcast
The Beer Mighty Things Podcast
Grey Matters Podcast
A special thanks to Nick at WBNG for building this pro bono PSA commercial
Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November. StacheStrong invites you to participate with us during November by letting your mustache grow wild as we aim to further spread our mission to combat the deadliest brain cancer.  Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer.  Patients and their families feel isolated during what is seemingly an insurmountable uphill battle.  Let’s start the conversation today, one ‘Stache at a time! If interested in participating and raising funds and awareness for our mission, please let us know. New this year – you will be able to create and design your own fundraising page on our site to join the cause!
Amazon  Prime  Day
Did you know that you can raise money for StacheStrong just by shopping as you already do on Amazon?! Follow the below steps on your phone/computer to add StacheStrong as your benefitting charity and Amazon will donate a portion of all your future purchases to our mission! Amazon Prime Day is coming up on June 21st so make sure to do this before.
 
abc

Get the app

Download or update to the latest version of the Amazon Shopping app on your phone. You can find it in the App Store for iOS or Google Play for Android.

Dining sets

Join AmazonSmile

If you are not already an AmazonSmile member, simply sign up at smile.amazon.com and select your favorite charity to start generating donations, at no cost to you.


Turn on AmazonSmile

Open the app and find ’Settings’ in the main menu (☰). Tap on ‘AmazonSmile’ and follow the on-screen instructions to turn on AmazonSmile on your phone.

 
My Papa used to say “Don’t cry because it’s over, smile because it happened.” While I normally couldn’t agree more, last week was certainly a day I ‘cried because it was over’ when Ed let me know that his beloved Jess Morris had succumbed to GBM after a valiant 5+ year battle. You see, Jess was the FIRST person I ever met with GBM besides my brother. I remember taking a picture of her and GJ in September 2018 at the Biden Cancer Summit – both donning infectious smiles –  fully spread from ear to ear.

They were handed an incurable diagnosis and absolutely devoted themselves to flipping the script on this disease. Jess and I grew close over the past 3 years and joined arms in the fight against GBM. We’ve shared laughs, tears, a few glasses of red wine and plenty of speaking engagements and key notes together. She was invincible to me and I’ll forever value our friendship.

She founded Our Brain Bank, an interactive app that is focused on gathering data to improve knowledge and treatment options, all while fighting GBM. 10,000 people die every year from GBM and we’ll continue to push the envelope to change that, but losing Jess hit me hard. All the while, I had to remind myself of exactly what she would want. Get up, dust yourself off, and fight this beast. Fight this beast we will. Rest in peace, Jess.
Thank  You  to  our  Supporters!
We truly can’t thank everyone enough for their support and generosity over the past 3+ years.  Raising over $1,250,000 for brain cancer research is truly amazing and we can’t put into words the profound impact that each of you have had in our fight against GBM.  It means the world to us, but more importantly, to all those hoping for a cure.
Facebook
Instagram
Twitter
YouTube
Website
Copyright © *|CURRENT_YEAR|* *|LIST:COMPANY|*, All rights reserved.
*|IFNOT:ARCHIVE_PAGE|* *|LIST:DESCRIPTION|*

Our mailing address is:
*|HTML:LIST_ADDRESS_HTML|* *|END:IF|*

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

*|IF:REWARDS|* *|HTML:REWARDS|* *|END:IF|*
*|MC:SUBJECT|*
Your Donations and Support Made a MAJOR Impact in 2020
2020 was an interesting year, to say the least; however, our supporters made sure to continue to make a difference and support the advancement of brain cancer research.  We had a majority of our events cancelled this year, but still managed to raise nearly $200,000 during a pandemic.  That’s the power of each and every one of you across all 50 states and several countries.  We funded 3 separate clinical trials/research grants this year and with your help, will continue to push the envelope in 2021 and flip the script on GBM!  Thank you from the bottom of our hearts and from all those facing this dire disease.  Here’s to a brighter, safer and healthier 2021!!!
An Added Tax Benefit for 2020 Donations
This spring, the CARES ACT was passed into law and allows a “partial above the line deduction” for your donations.  In the past, the only way to deduct charitable giving was by itemizing your deducations.  In 2020, even if you take the standard deduction on your tax return, you can still claim a deduction of up to $300 in donations made by cash, check or credit card!  Charitable donations can reduce your taxable income and there’s still 2 days to take advantage of these new benefits by donating before the year ends if you haven’t reached $300 in 2020.
Happy New Year!!!
Unfamiliar with our story?  Check out part 1 of our 3 part documentary and get to know the inspiration behind StacheStrong.
Instagram
Facebook
Twitter
Website
Email
#LiveStacheStrong
Copyright © *|CURRENT_YEAR|* *|LIST:COMPANY|*, All rights reserved.
*|IFNOT:ARCHIVE_PAGE|* *|LIST:DESCRIPTION|*

Our mailing address is:
*|HTML:LIST_ADDRESS_HTML|* *|END:IF|*

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

*|IF:REWARDS|* *|HTML:REWARDS|* *|END:IF|*
*|MC:SUBJECT|*
THANK YOU!

WOW.  It’s not often that I’m left speechless, but the 3rd Annual 5K Run/Walk did just that.  Watching 1,114 people within ALL 50 states participate and post on social media, while proudly wearing their neon orange StacheStrong shirts, was a sight to behold.  So many families and communities came together for their loved ones and those affected by GBM. 
 
We had over 100 people run #ForJari in several states.  #TeamMarty was active with large followings in Florida, Ohio and Texas.  The #LexiStrong brigade was out in full force together in Pennsylvania.  #TeamTB had 3 generations of participants in North Carolina.  #TeamRog made a morning out of the event with brunch and a walk together.  #TeamRick had plenty of New York covered.  We even had a family and a running group in Alaska run #ForJohn.  So many of you showed up and represented your loved ones, while also raising a tremendous amount of awareness for StacheStrong and brain cancer research.
 
THIS is why we built StacheStrong – to serve as a beacon of hope and provide a sense of community to all those fighting their battle.
 
As we watched the outpouring of support on social media, I couldn’t help but picture Geej and his infamous smile, knowing that so many people had rallied around our mission.   We can’t thank each of you enough!!!

YOUR IMPACT – OVER $50,000 RAISED!

Because each of you took the time to register, participate and post on social media, we were able to raise net funds of over $50,000.  What does this mean?  We are going to be able to fully fund a clinical trial and already have our Medical Advisory Board reviewing a highly graded grant proposal for Glioblastoma research.  This is a major deal and something each of you can be proud of.  All of your posts, shares, and miles logged are going to make an immediate impact and difference in the advancement of brain cancer research!

WHAT’S NEXT?!
Your support for the 3rd Annual 5K has made a major impact on our ability to continually fund cutting edge research.  We hope your commitment and relationship with StacheStrong continues!  You can support further by visiting our online store, where we have pocket tees, crewnecks, athletic performance shirts (same material as the 5K shirt), as well as hats and many more items.  Comfy and affordable clothing that also benefits brain cancer research? Checkmate!
MOVEMBER – JOIN US!

Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November.  We invite you to  #LiveStacheStrong with us during November and let your mustache grow wild throughout the month as we aim to further spread our mission to combat the deadliest brain cancer.  Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer.  Patients and their families feel isolated during what is seemingly an insurmountable uphill battle.  Let’s start the conversation today, one ‘Stache at a time!!! 

We had a tremendous amount of support last year from different police and fire departments , as well as several individuals from around the United States.  If you or someone you know is interested, please email us and we will set up a donation page for your group on our website.  We mustache you to tag @StacheStrong and use #GrowStacheStrong and #LiveStacheStrong in all social media posts.

Run solo, but not alone. Always run with ROAD iD, the one accessory no runner should be without.  You can customize this simple and stylish ID with the information most important to you, from emergency contact numbers to vital medical info.

Click here to score a Limited Edition StacheStrong ROAD iD.  ROAD iD is donating $10 from each purchase to StacheStrong – pairing peace of mind with purpose! 

WE ARE EXCITED TO HAVE YOU ON TEAM STACHESTRONG AND LOOK FORWARD TO FUTURE EVENTS AND PARTNERSHIPS IN AN EFFORT TO RAISE FUNDS AND AWARENESS FOR BRAIN CANCER RESEARCH!!!
Unfamiliar with our story?  Check out part 1 of our 3 part documentary and get to know the inspiration behind StacheStrong.
Instagram
Facebook
Twitter
Website
Email
#LiveStacheStrong
Copyright © *|CURRENT_YEAR|* *|LIST:COMPANY|*, All rights reserved.
*|IFNOT:ARCHIVE_PAGE|* *|LIST:DESCRIPTION|*

Our mailing address is:
*|HTML:LIST_ADDRESS_HTML|* *|END:IF|*

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

*|IF:REWARDS|* *|HTML:REWARDS|* *|END:IF|*
*|MC:SUBJECT|*
View this email in your browser
StacheStrong Newsletter
March 2020
www.StacheStrong.org
StacheStrong@gmail.com
Facebook
Instagram
Twitter
YouTube

Hello  StacheStrong  Fam!

I remember it like it was yesterday, yet at times it feels like forever ago.  I came to GJ with an idea to take StacheStrong beyond a catch phrase within our inner circle by formally starting a nonprofit charity.  I shared the website I had been therapeutically building and asked my brother if he wanted to go forward with this or just focus on his fight.  Without hesitation, he emphatically said, let’s do it!  From that day forward, we set out together on a mission to help others and ultimately raise funds and awareness for brain cancer research.  Knowing what I know now about GBM, it’s even more amazing how devoted he was to helping others after being diagnosed with a terminal illness.  Becoming an inspiration for so many, his selflessness was best captured during an interview with a local news channel when he stated, “I’m interested in helping people less fortunate than me.”  On the 2nd anniversary of StacheStrong, we’re committed as ever to continuing GJ’s mission of helping others.

I vividly remember how excited GJ was when we raised our first $10,000.  I also remember the huge smile on his face when I told him we had eclipsed $100,000.  I miss that smile and boy do I wish I could get the chance to see his face to tell him, we surpassed $250,000 a day before our organization’s second anniversary.  It’s incredibly exciting to say that our first quarter million for research was raised in two years, all stemming from his determination to #LiveStacheStrong combined with the overwhelming generosity of our donors.  I know he’s watching over and guiding us all as we continue to make an impact and flip the script on GBM.

A lot has happened to date, but more work lies ahead to ensure people like GJ have a chance for a cure.  Thank you to each and every one of you for being along for the journey so far, but buckle up because it’s time to take this to the next level!

Online  Store

For nearly 2 years, the Gerner household has been a mini workshop, preparing orders, organizing thousands of shirts and ensuring each one gets to our supporters.  It’s been incredibly rewarding watching the impact first hand as the shirt orders continually poured in. As you have seen, our classic black StacheStrong shirts have been worn proudly across the world, including Africa, Asia, Australia, Europe, North America and South America (we’re still waiting on someone to visit Antarctica!!!).

Because of YOUR support, we’ve grown to a point where we now need a 3rd party provider and we’re excited to announce the launch of our online store, which will be fully handled by Worldwide Sport Supply.

One thing that has always been important to us in everything we do is QUALITY. Our team has spent the past few months vetting thousands of items from several catalogues. We have touched and tried on every item in our store, ensuring that only top notch gear is sold!

How’s this going to work for our supporters? On the last Monday of every month, the store will compile all orders, print our logo and mail out. You can expect your order to arrive 2-3 weeks after month end. Please shop online to see all of our StacheStrong gear, which includes shirts, sweatshirts, polos, tank tops, hats and much much more!

Meet  Our  CFO

Greg Rose is a Senior Manager Tax consultant at EY with over 9 years of public accounting experience advising global multinationals in a variety of tax matters including US corporate tax compliance, global US GAAP tax reporting, tax modeling, tax operating model design, and tax planning.  He is also a UAlbany and Delta Sigma Pi Alum, where he originally got to know GJ.  Greg’s continued success in his field and personal connection to GJ, UAlbany and EY make him a tremendous addition to our organization and we’re incredibly excited to have him on board.

Medical  Advisory  Board

With the guidance of our esteemed board member, Doctor Hadjipanayis, StacheStrong now has a Medical Advisory Board to review grants and distribute funds to cutting edge areas of research.  Our Medical Advisory Board features 5 different clinicians and researchers with a brain tumor focus at Columbia University, Mount Sinai and NYU Langone.  We are excited to take this next step with the help of the below individuals, who will be responsible for scoring applications based on scientific merit.

Andrew B. Lassman, MD
John Harris Associate Professor of Neurology and the Chief of Neuro-oncology at Columbia University Irving Medical Center

Dimitris Placantonakis, MD, PhD
Associate Professor of Neurosurgery at NYU Langone School of Medicine

Dolores Hambardzumyan, PhD, MBA
Neuroscientist with a major focus on Neuro-oncology at Mount Sinai

Erik P. Sulman, MD, PhD 
Professor and Vice-Chair of Research, Department of Radiation Oncology at NYU Langone Laura and Isaac Perlmutter Cancer Center

Praveen B. Raju, MD, PhD
Pediatric neurologist with board certification in Neurology with Special Qualifications in Child Neurology at  Mount Sinai

Live  Like  GJ  Initiative

While StacheStrong’s mission is still to raise money for brain cancer research, we know the importance of celebrating life.  Research allowed GJ to live 25 months after his diagnosis, doubling the statistics for his longevity.  During that time, we were fortunate enough to have countless days enjoying life during his fight, and StacheStrong will be honoring his legacy by providing a game day experience to his favorite teams.  As we originally mentioned in GJ’s obituary, we’re excited to launch the ‘Live Like GJ Initiative’ and give the gift of “GJ smiles” to a family going through GBM treatments. 

Our family enjoyed trips, sporting events, concerts and memorable times together and NONE of this would have been possible without his zest for life and positivity.  We also were fortunate enough to have a strong family unit that made it a priority to enjoy every waking second together.  During the 25 months he battled GBM, we were able to experience more together than most do in a lifetime. 

GJ adored the NY Mets, NY Jets and UNC Tar Heels so we will ensure another family battling GBM can be selected to receive tickets to watch one of GJs favorite teams. If you would like to nominate yourself or a family going through GBM, please nominate here

At this time, we are accepting nominations for these New York Mets game tickets:


4 Field Level Tickets and 4 Batting Practice passes
New York Mets Home Game in April/May 2020 for a Monday-Thursday game.


For corporate sponsorships and partnerships – please contact us!

2nd  Annual  Chicago  Fundraiser  –  May  30th

We will be hosting our 2nd Annual Chicago Fundraiser at Point & Feather on Saturday, May 30th from 6:00pm – 9:30pm. May is Brain Cancer Awareness Month and last year’s event resulted in over $10,000 raised for research with over 150 people in attendance. Please buy your ticket today and consider sponsoring our event via one of the options below to assist us in our efforts of combating brain cancer:

Gold Sponsor ($2,500): Recognized on all event correspondence, as well as separately on the banner at the event and our website.  Includes 4 tickets to event.

Silver Sponsor ($1,000): Company logo will appear on the banner at the event and our website. Includes 2 tickets to event.

Bronze Sponsor ($500): Company logo will appear on our website.
Oskar Blues Brewery: S.M.A.S.H. For Stache IPA

We’re proud to announce the third iteration of our ongoing partnership with Oskar Blues Brewery for Brain Cancer Awareness Month! StacheStrong will be traveling to the Oskar Blues Brewery in Austin, Texas to brew S.M.A.S.H. for Stache IPA. This year’s beer will also be packaged in 12oz cans featuring the StacheStrong logo.

Oskar Blues will be pouring S.M.A.S.H. for Stache at its taprooms in Austin, TX; Boulder & Longmont, CO; and Asheville & Brevard, NC, for the entire month of May, and donating a portion of all proceeds to StacheStrong. Additionally, a small allocation of cans and kegs will be sent within StacheStrong’s home market in NYC, including Jackson’s Eatery in Long Island City, Jake’s Dilemma on the Upper West Side and The Stumble Inn on the Upper East Side. Liquid should be arriving to NYC by the first week of May.

We’re extremely thankful to OB and Lou McKercher for growing this partnership. If you’re an IPA fan, we think you’ll love the beer and we can’t wait to see pics of everyone with a StacheStrong can/pint in their hands.  Please remember to always drink responsibly.
#Ride4Rick  With  Crunch  Fitness

We’ll be partnering with Crunch Fitness again this year during May and offering classes to raise money for StacheStrong.  Dates and final details will be announced soon!
2020  TCS  New  York  City  Marathon

We’re proud to have been accepted as an official community charity partner for the 2020 TCS New York City Marathon.  This year is the 50th Anniversary of the race and we have 5 bibs!  If you’re interested in applying for our marathon team, please apply here by March 31st, 2020 to be considered.
Morgan & Morgan P.A.

Morgan & Morgan P.A. in Orlando, FL raised $10,000 throughout February for StacheStrong.  The employees raised $5,000 together, with another $5,000 granted by the firm.  Special thanks to Paul McBride for driving this campaign and for all those who donated.  If you’re interested in doing something similar at your company, contact us!
Thank  You  to  Our  Supporters!

We truly can’t thank everyone enough for their support and generosity over the past 2 years.  Raising $250,000 for brain cancer research in our first 2 years is truly amazing.  We can’t put into words the profound impact that each of you have had in our fight against GBM.  It means the world to us, but more importantly, to all those hoping for a cure.
Facebook
Instagram
Twitter
YouTube
Copyright © *|CURRENT_YEAR|* *|LIST:COMPANY|*, All rights reserved.
*|IFNOT:ARCHIVE_PAGE|* *|LIST:DESCRIPTION|*

Our mailing address is:
*|HTML:LIST_ADDRESS_HTML|* *|END:IF|*

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

*|IF:REWARDS|* *|HTML:REWARDS|* *|END:IF|*
*|MC:SUBJECT|*
View this email in your browser
StacheStrong Newsletter
November 2019
www.StacheStrong.org
StacheStrong@gmail.com
Facebook
Instagram
Twitter
YouTube

Hello  StacheStrong  Fam!


It’s been 5 months since our last newsletter and an indescribable amount of change and grief has occurred in that time.  After a 25 month battle with GBM, our inspiration, GJ, passed the torch to us to continue the fight against GBM.  He gained his wings on September 17th, 2019 and while it’s been a daily battle for all of us, we must continue to #LiveStacheStrong together as we raise funds and awareness for brain cancer research.  You all have done just that as our organization has raised more than $210,000 since incorporation.  Together we ARE making a difference as we flip the script on GBM.

Live  Like  GJ  Initiative

As we mentioned in GJ’s obituary, we’re excited to launch the Live Like GJ Initiative and give the gift of “GJ smiles” to a family going through GBM treatments.  We were fortunate enough to have countless days enjoying life during GJ’s fight and StacheStrong will be honoring his legacy by providing a game day experience to his favorite teams, inclusive of tickets.  He adored the NY Mets, NY Jets and UNC Tar Heels so we will ensure another family battling GBM can also enjoy these same adventures.  Stay tuned for our official campaign launch during 2020.  For corporate sponsorships – please contact us!
New  Website  Design

www.StacheStrong.org was originally built as a therapeutic release that ultimately became a 501(c)3 organization.  Two years later, we have an entirely new platform and design, thanks to our friends at Pinckney Hugo Group.  We can’t thank their team enough for their dedication to our mission and donating their time.  The new website has enhanced capabilities and we’re ecstatic to see where it will take our mission!
Meet  Our  Newest  Board  Member

We met Josh Perry at the Biden Cancer Summit last September and GJ always admired his energy and passion.  After a third brain tumor diagnosis, Josh left the comfort of a professional BMX career to harness the power of his incredible story and inspire others to foster new perspectives and take action in their lives.  Josh illustrates how challenges come in different shapes and sizes, yet for every problem there’s always a solution. He emphasizes that happy and successful people use the same mental tools to get them there, regardless of their past or current tribulations.  He will be a tremendous addition to our organization and truly embodies our mantra  – #LiveStacheStrong

2nd  Annual  StacheStrong  5K  Run/Walk

Our annual 5K run/walk was a tremendous success with 353 virtual and in person registered runners.  Together we raised over $10,000 as the community ran in GJ’s honor.  Save the date for our 3rd Annual StacheStrong 5K Run/Walk on Saturday, September 19, 2020.  Special thanks to our sponsors and supporters for making this year so impactful.
NYC  Fundraiser

Our annual main fundraiser was our biggest yet thanks to all of our supporters.  We had 220 people attend, 51 donated baskets and together we raised over $22,000.  A special thanks to our friends and supporters at McHale’s Pub, as well as our Event Sponsor – Novocure and Gold Sponsor – National Brain Tumor Society.
2019  NYC  Marathon

The NYC Marathon was on 11/3 and our team was absolutely tremendous.  They braved the 26.2 mile course and made us all feel GJ’s presence amongst the cheering crowds.  Together, our team raised $20,975 and finished strong…StacheStrong!
– Application for our 2020 NYC Marathon team will be sent out in January –
If interested, please click here!
Corporate Volleyball Tournament

The employees at Alliant Credit Union in Illinois honored StacheStrong in their 14th Annual Charity Volleyball tournament.  They raised $8,840, which was matched by the Alliant Foundation for a total donation of $17,680.  Special thanks to all those involved in making this happen at Alliant.  If you’re interested in doing something similar at your company, contact us!
#GrowStacheStrong

We have several police forces and individuals growing out their mustaches this November in support of our mission.  Let us know if you’d like to be part of the team!  November is the best excuse to #GrowStacheStrong and we’d be honored if you’d grow your mustache and promote our mission.  Anytime anyone asks why you’re growing out that gnarly ‘Stache, educate them about StacheStrong and GBM!
Click Here To Support Our #GrowStacheStrong Teams
Dr. Hormigo’s Research Funded With $100,000 Grant!

As our mission states, we are dedicated to flipping the script on GBM and finding a cure.  We won’t rest until this occurs and we have donated $100,000 in partnership with the National Brain Tumor Society to launch Dr. Adilia Hormigo’s research project.  Dr. Hormigo was GJ’s Neuro-Oncologist (pictured below) and is dedicated to researching and combating brain cancer in a patient centric model.  We are funding a fully personalized immunotherapy approach to GBM and believe this has great promise.  She is one of the best in the world and while you know GJ always believed he would be the first to beat GBM, she truly did, as well.  We’re honored to gift this grant to launch her latest research at Mount Sinai in NYC.
We also wanted to provide an update on the research we funded earlier this year, where we partnered with NBTS to gift $500,000 to launch GBM AGILE. This revolutionary new way of testing and developing brain cancer treatments is the largest collaboration in the history of brain cancer research and has already resulted in enrolling patients in this trial at 7 major health institutions across the U.S.  That’s how you #LiveStacheStrong!!!
Facebook
Instagram
Twitter
YouTube
Have a happy and safe holiday season!!!

If This Was Forwarded to You –> Click to Subscribe
Copyright © *|CURRENT_YEAR|* *|LIST:COMPANY|*, All rights reserved.
*|IFNOT:ARCHIVE_PAGE|* *|LIST:DESCRIPTION|*

Our mailing address is:
*|HTML:LIST_ADDRESS_HTML|* *|END:IF|*

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

*|IF:REWARDS|* *|HTML:REWARDS|* *|END:IF|*
Page Title

April 2019

StacheStrong Newsletter

StacheStrong partnered with the National Brain Tumor  Society (NBTS) to help launch GBM AGILE. Together, we have pledged $500,000 which will help fund a revolutionary new way of testing and developing brain cancer treatments and is a world-first global adaptive clinical trial brought about by the largest collaboration in the history of brain cancer research.

NBTS and StacheStrong gift $500,000 to help fund new clinical trial

Oskar Blues and StacheStrong are Brewing Against Brain Cancer

We have partnered with Oskar Blues Brewery and were invited onsite to brew “Passion Stache IPA.”  $1 from each pint of Passion Stache IPA sold in Oskar Blues’ Longmont, Colorado and Boulder, Colorado taprooms during the month of May (Brain Cancer Awareness Month) will be donated to StacheStrong. The kickoff event will be held on May 3rd and will culminate at the end of the month where we will host a “Stache Off” celebration event on May 26th at the Boulder taproom.

Throughout the month, follicularly blessed staff members at Oskar Blues Boulder Taproom will grow mustaches to raise additional funds for StacheStrong.

Pictured (left to right):

Colin Gerner, Founder, StacheStrong Juice Drapeau, Brewer, Oskar Blues

Lou McKercher, District Taproom

Manger at Oskar Blues and

Board Member, StacheStrong

For more information, please visit:

NBTS: https://braintumor.org

GBM AGILE: http://www.gcaresearch.org/gbm-agile

The past 5 months since our last newsletter have been filled with ups and downs, but we’ve continued to #LiveStacheStrong and flip the script on Glioblastoma (GBM).

In early December, GJ had a recurrence on the other side of his brain, which required a second emergency brain surgery.  Since surgery, he has gone from relearning to use a fork and knife, to running and golfing.  He has continued to rewire his brain and his improvements with speech and cognitive abilities are a true testament of his perseverance and passion to improve.  It is times like these that remind me of the reason we started this organization and what it means to live StacheStrong .

We just celebrated our 1-year anniversary last month and can’t wait to see what year 2 holds in store for us!

In our first full year as a 501(c)3, StacheStrong raised over $100,000 for brain cancer  research.  This feat isn’t possible without the overwhelming support from each one of you! All proceeds will be used to fund brain cancer research.

Hello StacheStrong Fam!

We recently announced a partnership with Crunch Gym in New York City where they will be hosting 16 special cycling classes to benefit    StacheStrong.  On May 7th and 11th at select clubs, Crunch members will cycle for a cure in loving memory of Rick Del Rosario.  Visit www.stachestrong.org/crunch to learn more and join us for an inspirational 2 days of spin classes benefitting brain cancer research!

We are ecstatic to announce the newest addition to our Board of Directors, Dr. Constantinos “Costas” Hadjipanayis.   He serves as Chair of Neurosurgery at Mount Sinai Downtown Union Square/Beth Israel and Director of Neurosurgical Oncology for the Mount Sinai Health System. Costas is a board-certified neurosurgeon who has devoted his entire career to the treatment of brain tumor patients.  He is the Director of the Mount Sinai Brain Tumor Nanotechnology Laboratory in the Tisch Cancer Institute where he studies novel  therapeutics targeting glioblastoma (GBM). 

Costas has been our family’s personal hero after conducting two successful brain surgeries on GJ.  His expertise and experience will be a tremendous addition to our Board!

Jackson’s in Long Island City creating StacheStrong Cocktails

Jackson’s, the Long Island City restaurant that  hosted our first fundraising event, has become     extended family and a major supporter over the past year.  They have a special StacheStrong cocktail on their brunch and  dinner menu; 50% of the proceeds are being donated to our organization.  We can’t thank Andrew and the Jackson’s crew enough for their love and support. 

Crunch Gyms and StacheStrong are Cycling for a Cure

Meet StacheStrong’s Newest Board Member

#RunStacheStrong at the Boston Marathon

We had 3 runners representing StacheStrong at the Boston Marathon, including 2020 Olympic qualifying elite runner, Christian Thompson.  He placed 39th overall with a time of 2:24:25.  His efforts also included raising over $3,000!

Chris Gaube and Paige Thompson also ran incredible races, with times of 3:07:16 and 3:18:18 respectively.

UNC Men’s Basketball Team #LiveStacheStrong

In February, GJ and I were invited by the UNC Men’s Basketball Team to attend practice, shoot around with the team and sit behind the bench for their game vs Miami.  GJ is a lifelong Tarheel fan and it was a special day watching him play ball with the UNC players, hitting shots at one of the most famous arenas in college basketball 2 months after brain surgery!  That’s how you #LiveStacheStrong

Happy St. Patrick’s Day

Our St. Patrick’s Day shirt sale was a tremendous success and resulted in 372 shirts being sold and a total of $10,340 raised.  It was great to see all the green StacheStrong shirts across the nation on our favorite holiday!

Upcoming Chicago Fundraiser on Saturday, May 11th

We will be hosting a major fundraiser in Chicago on Saturday, May 11th.  The event will take place at the Joy District in the River North area and will include an open bar from 6:00pm – 9:00pm.  This night is about raising awareness and funds for brain cancer research, but also about celebrating life by ensuring we all #LiveStacheStrong, just like GJ is!  Encourage your family, friends, neighbor, coworker, etc. to also buy a ticket because ultimately a friend of yours is a friend of StacheStrong’s as we join together to battle GBM.

2019 NYC Marathon – Team StacheStrong

We are pleased to have received 5 bibs for the 2019 NYC Marathon on Sunday, November 3rd. 

Our StacheStrong team has been selected after an application process and our 5 athletes are ready to #RunStacheStrong and train for this momentous feat over the next several months. 

Congrats to Andrew Karistinos, Nick Delligatti, Katie Fargnoli, Michelle Fischetti and Logan Mongelli!!!

2nd Annual StacheStrong 5K

The  2nd Annual StacheStrong 5K will take place on Saturday, September 21st in Vestal, NY.  Stay tuned for more information!

As  always, please continue to advocate for StacheStrong to individuals and      companies to further support StacheStrong and partner in creative ways to raise additional funds for brain cancer research. 

We couldn’t do any of this without you, and for that we are eternally       grateful.  Together we ARE making a difference!

Best,

 

 

 

Colin Gerner

President, StacheStrong