Tomorrow is National Glioblastoma Awareness Day and we thought it was the perfect timing to update you on all that has happened with StacheStrong in the first half of 2022! If you only have a brief moment, make sure to register for the upcoming 5th Annual 5K Run/Walk!!!
…otherwise please read on to catch up on all things StacheStrong!
You all continue to amaze our family with your generosity and support; it’s amazing to see the continual growth of our organization as we aim to flip the script on this disease! We have now raised over $2,000,000 and funded 21 research grants to date – – – I say it time and time again, but I remember when we raised our first $10,000 and the excitement that I shared with my brother for what we were doing. We have become a leading organization in this space, which is only possible because of YOUR support.
Live Like GJ Initiative
Iron Man Jersey Auction
Research Funded We’ll update you on all the awesome events and happenings below, but what matters most is where this money is going and the good that it is doing in advancing brain cancer research. We funded 4 grants already this year in the following highly rated and promising areas:
1) Glioma Connectome Project (GCP): We have added a 7th institution (University of Texas – Houston) to this study, which was first reported by Yahoo News. We also just announced the first patients have been enrolled in this innovative study! This project aims to utilize information about how the brain is organized (connectomics) and how it relates to the patient’s experience (neuropsych tests, documented deficits, etc.) from before AND after glioma surgery. Machine learning techniques aid in the study about how the brain lives with a tumor and reorganizes during treatment, as well as recurrence, to increase fundamental understanding of the brain and how to provide better care for brain tumor patients.
2) UCLA:novel anti-angiogenic combination therapy for glioblastoma study (Issac Yang, MD and Madhuri Wadehra, PhD)
4) Brigham and Women’s Hospital:Assessing tumor-associated macrophage plasticity regulation by HNRNPH1 to augment adaptive antitumor responses to glioblastoma (Genaro R. Villa, MD, PhD)
These are tangible results to remind you why every dollar matters. It’s why your support is crucial. We can’t promise what tomorrow holds, but we can promise that StacheStrong will continue to push the envelope and fund cutting edge research in the hope of a world without brain cancer.
5th Annual 5K Run/Walk We are excited to host the 5th Annual StacheStrong 5K Run/Walk as a VIRTUAL AND IN PERSON (Vestal, NY) race during the weekend of September 17, 2022. All participants will receive our classic black athletic performance material shirt. Last year’s event had 1,500+ participants in all 50 states and we’re hoping to further grow these totals to make an even bigger impact on brain cancer research!
You can complete the virtual run in your respective city and state at ANY TIME during that weekend and we will also hold the in person race in our hometown of Vestal, NY at the Vestal High School at 3:00pm on Saturday, September 17th. This is of extra significance for our family as it will be the event’s 5th anniversary (#Forever5) and 3 years to the date since Geej gained his wings.
#BrewStacheStrong The #BrewStacheStrong collaboration is bringing together breweries and communities across the country in support of a disease that impacts far too many people. Just like every ‘Stache tells a story, every beer tells a story. We #BrewStacheStrong to promote and benefit brain cancer research with breweries across the country.
We ended up partnering with 252 breweries in 40 states, which accounted for over 300,000 pints being brewed. Having this many breweries participate is humbling and beyond promising. We’ve already started our outreach for 2023’s #BrewStacheStrong campaign so if you have a contact or friend in the beer/beverage/restaurant industry, please connect us via email. This campaign has the ability to make a profound impact for years to come!
Our NYC fundraiser was the first ever event that launched StacheStrong in 2018. Our dedicated committee invites you to save the date for October 21st from 7:00 – 11:00 pm. We will be returning to Legends on W 33rd street (5 minute walk from Penn Station). If you, your company or someone you know would like to sponsor the NYC event or donate any items/experiences to raise additional funds, please let us know.
We have been accepted as a Bronze Sponsor and have been allocated 25 bibs for this year’s race, which will be held on Sunday, November 6th. We have filled our entire team and they have already raised $50,000+. If interested in applying for next year’s marathon, please email us at StacheStrong@gmail.com to be considered!
May is a powerful month in our community as it’s national Brain Tumor Awareness Month, which means we are able to put this dire disease at the forefront. Every day throughout the month of May, we highlighted a different person and family that have been impacted by GBM. This disease affects 13,000 people annually and we feel humbled and blessed to be able to provide a platform for those who have gone through it. We invite you to visit our social media channels and read stories from across the country. If you’ve ever watched a loved one go through this diagnosis, every day is ‘brain tumor awareness day’, but for those that haven’t, this is a raw and emotional look into the disease that ultimately claims 10,000 lives every year. Our social media channels were able to reach over 125,000 different people throughout #BTAM – thank you to all those who shared their story throughout the month.
Olympic Games – Beijing 2022
This past February was one to remember when Matt Hamilton and the U.S. Men’s Curling team took the world by storm. Matt has become a major advocate for StacheStrong and his electric style, mustache and long locks became a viral sensation. He used his platform to raise over $10,000 for StacheStrong by committing to cut his hair at the conclusion of the Winter Games. Seeing the StacheStrong hat on every major media page as well as having people learn about our mission during their biggest moment was beyond special. Cheers to Matt and #TeamShuster – can’t wait to see the squad back in 2026!!! (Olympics.com coverage)
Click the above picture to watch the video highlighting global coverage of this!
While StacheStrong’s mission is still to raise funds and awareness for brain cancer research, we know the importance of celebrating life. Research allowed GJ to live 25 months after his diagnosis, doubling the statistics for his longevity. During that time, we were fortunate enough to have countless days enjoying life during his fight. NONE of this would have been possible without his zest for life and positivity. We were fortunate enough to have a strong family unit that made it a priority to enjoy every waking second together. During the 25 months he battled GBM, we were able to experience more together than most do in a lifetime.
We came up with the #LiveLikeGJ Initiative while in hospice care during the last days of Geej’s life. This initiative will honor his legacy by providing a game day experience and giving the gift of “GJ smiles” to a family going through GBM treatments. This year we were able to send Kelly and her family to the Mets game, who represent EVERYTHING StacheStrong stands for. Togetherness, grit, unwavering support for one another and ear to ear smiles. We’re truly blessed to continue to meet amazing individuals like Kelly and proud to provide an evening at the ballpark last week!!!
A MAJOR thank you and appreciation to the Mets organization for making this day truly memorable. They gave their family everything and more than we envisioned when we started to plan this initiative. Excited to partner with this organization to help families #LiveLikeGJ! If you would like to nominate yourself or a family going through GBM, please nominate here. For corporate sponsorships and partnerships – please contact us!
Iron Man Jersey Auction and First Pitch
Special thanks to the whole Syracuse Mets team for making this happen. The only way to defeat brain cancer is by working together and building a community so we’re beyond appreciative of all the team does!!! My brother was a die hard Mets fan and I think he’d be pretty proud of this partnership.
It’s fitting that the jerseys the team wore that are currently being auctioned off and available for you to bid on are Iron Man because that’s exactly who my brother was throughout his 25 month battle with glioblastoma. A true super hero. Make sure to bid on the game worn Iron Man Jerseys to benefit our mission. Together we WILL strike out brain cancer!!!
We are pleased to let you know that we have a devoted committee focused on launching the StacheStrong Invitational in Jupiter, FL on Monday, May 8, 2023. Stay tuned for more details about our golf tournament and please reach out to us if you or anyone you know would be interested in being a sponsor for the inaugural event!
Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November. StacheStrong invites you to participate with us during November by letting your mustache grow wild as we aim to further spread our mission to combat the deadliest brain cancer. Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer. Patients and their families feel isolated during what is seemingly an insurmountable uphill battle. Let’s start the conversation today, one ‘Stache at a time! If interested in participating and raising funds and awareness for our mission, please create your account/unique fundraising page here!!!
Amazon Prime Donations Did you know that you can raise money for StacheStrong just by shopping as you already do on Amazon?! Follow the below steps on your phone/computer to add StacheStrong as your benefitting charity and Amazon will donate a portion of all your future purchases to our mission! If you think you are already doing so, make sure to check your app because you need to re-enroll bi-annually.
Get the app
Download or update to the latest version of the Amazon Shopping app on your phone. You can find it in the App Store for iOS or Google Play for Android.
If you are not already an AmazonSmile member, simply sign up at smile.amazon.com andselect your favorite charity to start generating donations, at no cost to you.
Turn on AmazonSmile
Open the app and find ’Settings’ in the main menu (☰). Tap on ‘AmazonSmile’ and follow the on-screen instructions to turn on AmazonSmile on your phone.
Thank You to our Supporters!
We truly can’t thank everyone enough for their support and generosity over the past 4+ years. Raising over $2,000,000 for brain cancer research is truly amazing and we can’t put into words the profound impact that each of you have had in our fight against GBM. It means the world to us, but more importantly, to all those hoping for a cure. Let’s keep this going and TOGETHER, we WILL defeat brain cancer!!!